Navitas Life Sciences

Successful Registry and Data Coordinating Center Support for Parkinson’s Foundation’s Parkinson’s Disease GENEration Registry

The Parkinson’s Foundation (PF) works towards improving care for people with Parkinson’s disease (PD) and people at risk of developing PD and advancing research to find a cure. The foundation has a multi-center community and offers genetic testing to create a genetic data and sample repository. This registry program also provides genetic counselling to the participants. The PF required the services of an experienced clinical research organization as the Registry Coordinating Center supporting their large genetic registry program.

Please complete the form to download the Case Study and learn how we

  • Streamlined process and support to over 90 sites
  • Provided efficient and effective data management and quality control
  • Ensured successful Integration of the clinical data of nearly 2000 patients with the genetic data
  • Shared data sets with The Global Parkinson’s Genetics Program (GP2), National Institute on Aging (NIA) and Michael J Fox Foundation

Please complete the form to download our Case Study.

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